Programme Information


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The Patient Programme for the Fourth World Systemic Sclerosis Congress will consist of interactive sessions of lectures and discussion between consultants and patients. Lectures will be given in English but translated into Portuguese, Spanish and French. Some topics will be covered in smaller groups and in different languages.
Experts will answer question such as:

  • What are the options in treating SSc?
  • Is the heart involved?
  • Why is breathing so difficult?
  • What can I do to help my digestion problems?
  • What can be done about the pain in my feet?
  • Should I consider a transplant?
  • Can I try to get pregnant safely?
  • What new therapies are available now?
  • What are researchers and FESCA doing for us?
  • How can I cope with my fatigue?
  • Can I get help as a man with SSc?
  • How can my family and I deal with depression?
  • How can children with SSc learn to cope?

The patient congress will also include interactive exercise and breathing sessions, plus a round-table networking meeting for leaders of patient groups the afternoon before the congress, and plenty of networking opportunities during it.
Program updates will be published in the website.


Download the
Preliminary Programme

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